skulls&glitz

I reacted negatively to midodrine too! It jacked my blood pressure up incredibly high and gave me splitting headaches. Now I'm on a natural alternative, called Butcher's Broom.

Sun, 19 May 2013 22:44:52 -0400

Oh my, that’s not good! My doctor now has me on Betaxolol and so far it’s doing a lot of good. One thing that’s new is this weird headache at the back of my head and down my neck and it’s really starting to freak me out. Have you ever had those?

Photo

Sat, 18 May 2013 18:07:17 -0400

limecrime: Behind-the-scenes for new lipstick, Babette! (Coming...

Sun, 12 May 2013 22:19:19 -0400

limecrime:

Behind-the-scenes for new lipstick, Babette! (Coming this summer.) Model: Natasha Lillipore, hair by His Vintage Touch.

i stopped taking midodrine a few months ago because i was having the same issues! i didn't realize it was an allergy.. hmm.

Sun, 12 May 2013 15:45:20 -0400

That’s interesting! How exactly did it affect you? Like did you feel like your throat closed or that you just couldn’t get enough air?

Mast Cell Activation Disorder

Sun, 12 May 2013 15:43:21 -0400

I need help. My doctor told me that he thinks a lot of my problems are caused by Mast Cell Activation Disorder but that I have too many problems he needs to solve before we can get to that; he says “one thing at a time.” I understand that completely but I need help on trying to get myself on a diet that helps me. It seems like every time I eat I have trouble breathing and I get bad cramps and the only positive is that I’ve lost 11 pounds :/ If anyone has MCAD could you please message me a list of foods you eat and avoid? I’ve been trying to stay away from high histamine foods but this is impossible.

flozac: the principal at my school made an announcement...

Fri, 10 May 2013 21:57:43 -0400

flozac:

the principal at my school made an announcement yesterday that the girls need to start covering up and then i found this in the hallway

Photo

Fri, 10 May 2013 21:56:03 -0400

bunnika's blog: I feel like a fraud sometimes

Fri, 10 May 2013 21:44:42 -0400

bunnika's blog: I feel like a fraud sometimes:

bunnika:

sasha-smithy:

bunnika:

Because in the weeks when I don’t really have to do anything, when I can spend the vast majority of my time at the computer or in front of the TV, just being lazy, I usually feel okay. Stuff hurts, but stuff always hurts, and it’s background noise at this point, I don’t even think about it. But then I start thinking about how I’m not thinking about it, and how oh my god it must not be real then, dear lord I’m such a phony I’m not even a cripple I bet I could get up and run a mile if I’d just get off my fat ass!

And then I have a day like today where going in and out of the store aggravates my knees to the point of pure agony, and the effort of wrangling a warehouse-sized bag of toilet paper into my subcompact car has left my shoulders protesting that I dare do so much as type, and suddenly I feel both comforted in my authenticity, and angry at the reminder that oh yeah, I really am a cripple.

The self-doubt that comes with this shit is almost as bad as the actual pain.

I’m having issues with the bolded part today. I was even (trying not to) freaking out while watching tv with one of my friends today, convinced that her and everyone else would think I’m a phony and maybe I really am maybe I’m not trying hard enough, but the last time I thought that, I went out with my walker and nearly got stuck in the middle of the road. TL;DR I agree with you.

My anxiety about this has pushed me to avoid the doctor. Like, I just don’t go. Which is bad, because I’m about to run out of beta blockers, and uh…that’s probably important.

When I go to doctors, they quiz me on why I’m in a wheelchair. Duh…because something is preventing me from walking. I explain the whole pain and dislocation thing. But they think the pain can’t really be that bad, I can’t really be dealing with such unstable joints, so can’t I just try walking? But the last time I really tried to just walk through it, I was stuck inside JC Penney only able to shuffle a few inches at a time, with all these people staring at me, and it hurt so bad…I don’t know why I listen to this doubting bullshit, but sometimes it creeps into my brain and I can’t drown it out.

skulls&glitz: This! I’m so glad I read this, it sums up how I feel so perfectly. It’s great to know I’m not alone.

"If you’re an introvert, you also know that the bias against quiet can cause deep psychic pain. As a..."

Fri, 10 May 2013 21:43:38 -0400

“If you’re an introvert, you also know that the bias against quiet can cause deep psychic pain. As a child you might have overheard your parents apologize for your shyness. Or at school you might have been prodded to come “out of your shell”— that noxious expression which fails to appreciate that some animals naturally carry shelter everywhere they go, and some humans are just the same.”

- Susan Cain, Quiet: The Power of Introverts in a World That Can’t Stop Talking (via fernsandmoss)

Photo

Fri, 10 May 2013 21:43:17 -0400

"I think it’s very healthy to spend time alone. You need to know how to be alone and not be defined..."

Fri, 10 May 2013 21:43:00 -0400

“I think it’s very healthy to spend time alone. You need to know how to be alone and not be defined by another person.”

- Oscar Wilde (via nothing—better)

reblog if you have a chronic illness. whether it be mental, physical, treatable, degenerative, severe, incurable, visible, invisible, or anything else.

Fri, 10 May 2013 21:42:50 -0400

h413y: The phrase “the only disability in life is a bad attitude” completely trivializes...

Fri, 10 May 2013 21:42:32 -0400

h413y:

The phrase “the only disability in life is a bad attitude” completely trivializes disabilities and you should definitely stop saying it.

Well I’m off Midodrine now because apparently I’m allergic to it. If anyone else has had...

Fri, 10 May 2013 19:09:56 -0400

Well I’m off Midodrine now because apparently I’m allergic to it. If anyone else has had a negative reaction to it please let me know. Mine was feeling like I couldn’t breathe which would lead into weird vision/feeling faint and then a panic attack.

Photo

Thu, 09 May 2013 12:50:12 -0400

nccmrm97: ELEPHANT Original watercolor painting 10X8inch by...

Thu, 09 May 2013 12:48:54 -0400

nccmrm97:

ELEPHANT Original watercolor painting 10X8inch by dimdi (25.00 USD) http://etsy.me/Zla6yp

Photo

Thu, 09 May 2013 12:48:20 -0400

Photo

Thu, 09 May 2013 12:47:26 -0400

Hi, I saw your post about POTS and the same thing has happened to me. I've gotten the weak arms, heart skipping, felt out of touch with reality, the rush of feeling hot, and like I could pass out at any moment, but different from usual POTS episodes. It's scary and does feel like you're dying. I have POTS and I've had two episodes like you described. I felt like that for at least 3 hours. I don't know what caused it, I wish I could give you tips, but I all I could do was wait for it to pass.

Tue, 07 May 2013 21:24:00 -0400

Was your heart beating extremely fast like as if you were running too? It was the scariest experience ever because my heart beats fast and hard most of the time but this was so different. Did you go to the hospital? I’m interested to know what they said/did for you. I’m glad I’m not the only one, thanks for sharing that.

Things you do not have to feel guilty about

Sun, 05 May 2013 20:39:28 -0400

becky-fitness:

Saying no sometimes

Wanting to be alone sometimes

Saying no to sex

Saying yes to sex

Not being sure about your life career

Deciding to study instead of going out

Getting rid of the toxic people in your life

Ending a relationship that is hurting you

Not liking the things everyone else likes