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May 29th(via grav3yardgirl)
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May 29th -
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May 27th -
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May 26th“I’m selfish, impatient and a little insecure. I make mistakes, I am out of control and at times hard to handle. But if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.”
(Source: -kunis, via lookingforourstarsinpapertowns)
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May 23rdOmg best xkcd EVER!
I wish healthy people understood that to be positive all the time and sick is pretty much impossible, it’s okay for us to have bad days emotionally AND physically.
(and it’s possible to have bad days emotionally when you’re fine physically, and good days emotionally when you’re bad physically!)
But sometimes i think our positivity is even stronger than when healthy people are so “positive” because we have real things to be negative about, and we still can recognize that there is usually something you can find to smile about.(via lookingforourstarsinpapertowns)
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my chronic illness bill of rights
I HAVE THE RIGHT…
- to the full range of emotional responses to my experiences—from self-pity to gratitude and everything in between.
- to seek out information and advice from any source i can find.
- to follow or disregard any advice or recommendations i receive from strangers, friends and family, fellow sickos, books, or health practitioners.
- to seek relief or a cure, or not, as i see fit.
- to healthcare, including face-to-face visits with allopathic and alternative practitioners, prescriptions and supplements, assistive devices, fitness classes, and access to the information i need to make informed decisions about the potential risks and benefits of whatever i pursue.
- to any accommodations i need in order to have the option of participation in the public life of my community and the larger society.
- to define my level of availability to others based on how i feel and my assessment of my needs.
- to make plans and commitments with the understanding that i may be too sick to follow through on them.
- to address conflicts and disagreements in ways that honor the delicate relationship between stress and my well-being.
- to not be compared, favorably or unfavorably, with others who share any or all of my diagnoses.
- not to have to answer the question, “how are you?”
- to be appreciated for the contributions i make to my communities, even just by my presence.
- to be valued for who i am, not what i do.
written by me, billie rain
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innatelymagical asked: -advise looking for a job where its no biggie if you sit down when people aren't in the shop! locally owned businesses are always great because they seem to be more understanding and less corporate-standards focused. My POTS isn't as severe as some peoples, but this is what I do to get through things when I have a really pots-y day. Mostly its just been a bunch of trial and error w/ reccomendations from other pots ppl to find which random things aid in my ability to function on a normal level.
I live in a small town that has very little opportunities; the Wal-Mart I applied at is actually about 15 minutes away in a little bigger town. If I was to apply at a grocery store as a cashier, I don’t think it’s possible I could sit down when I didn’t have customers.. would I have to tell my employer when I applied that I have POTS, so that they could accommodate me? I’m afraid that I would never get hired if that was the case. I do not faint but I do feel very ill and have terrible joint and stomach pain after standing for long periods.
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innatelymagical asked: I have pots and what I do at work is make sure im as hydrated as possible (I prefer alo exposed's coconut water&aloe vera juice drinks, along with straight uip water) and get a good night's sleep beforehand, and sometimes if I need to I take electrolyte stamina supplements from trace minerals (I usually take 2 if I'm going to my cashier job, though mine is one where I can sit down when no one is coming into the store) and don't feel well, or 3 or 4 if I'm going to be exercising. Mostly I'd-
Oh my goodness! You are absolutely fantastic for messaging me this advice :D Thanks so much :) Although, I did only receive part of the message but maybe you’re typing the second, now :p I have not heard of the products you mentioned except for coconut water but I will definitely be researching them and trying them out!!
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New music can be great but I feel like classic rock just has that ‘feeling’ that no new music really has
I don’t own this..
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POTS
I feel so shitty. I looked up on google to see what people with POTS do to cope when they’re working and all I found was depressing shit on how they ‘can’t’ work. I’m calling Wal-Mart back on Friday about my application because for the life of me, I can’t find a sit down job and who hires a 17 year old with no experience for anything other than a cashier anyways?
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May 16th(Source: classicleatherandlace)
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May 16th(Source: classicleatherandlace)
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May 15th
skulls&glitz
My name's Marissa and I'm 17. I was diagnosed with Postural Orthostatic Tachycardia Syndrome almost a year ago.
I love makeup, singing, playing guitar, and classic rock music.
Vudu Theme by David Rhyne.
Copyright © 2010–2012 skulls&glitz
